According to Cyndie, mom slept better but did wake up for a bit in the middle of the night. Thankfully she was able to get back to sleep for a bit. Little did we know, she’d have a long day of therapy today!
She started with OT, who helped her get showered and changed. I was able to make it about halfway through her PT session. I know she really likes PT, because she gets to move a lot and work her muscles. I think she’s afraid of losing all of that strength that she’s worked so hard to gain. She did great. I thought she might get a bit of a break before it was time for her speech eval but no such luck. Not only did the therapist arrive right after PT, she stayed for TWO HOURS! The therapist was great and did so much with mom. At the end, she asked mom what her primary goal is that she wants to accomplish. Basically, what’s more important – communication or swallowing? Mom said swallowing. Her communication has come such a long way. But unless her swallowing improves, she won’t be able to eat or drink real food. So I DEFINITELY agree with mom. We are a family of eaters. We need food!
More good talks with mom. I think we’re finally getting somewhere. This is still really hard but I think she’s starting to see the benefits in continuing to try and not give up. The best part of the last couple of days? Actually seeing her laugh. This brings me more happiness than she will ever know.
Tonight will be the first night that she will be alone. She doesn’t like it. She says she gets scared, the nights are really long, and she gets lonely. That breaks my heart. Unfortunately it’s just not possible to spend every night with her. I think she will be OK, but I know it’s going to be difficult. I hope and pray she gets through the night (meaning SLEEPS) and is in good spirits when I get back here in the morning.